The team pathologist as the HCI feels there is a possibility that the tumor has developed a malignancy component, and since desmoids never do that - it may be something else. They are going to do some aggressive cytology testing. The biopsy is scheduled for Friday and will be ultrasound guided at the Univ. of Utah hospital. My main concern is that it will continue to bleed out after the procedure as it did after the first biopsy. B~ and I will be travelling to St. George and Las Vegas for a couples' getaway before all the new changes come in to play. On the way home with Ty - it was just him & me- he tried to throw up several times. I felt so badly for him, but there was nothing I could do for him besides talk him thorough it and crank the air.
The girls were great at math today. S~ and Nicole had their dental cleanings and each had a cavity. We're all eating entirely too much sugar.
Last night, there was a shooting at Trolley Square. Six people are dead (including the gunman) and several more are injured. The only thing they know if the gunman us that he was 18 years old and a Bosnian refugee with a Muslim name. It is believed that it was just a random act of violence and not a terrorist activity.
Showing posts with label chemo effects. Show all posts
Showing posts with label chemo effects. Show all posts
Sunday, May 22, 2011
Thursday, May 5, 2011
February 2, 2007
Ellie discovered what poop is. She had her jammies off and I was changing Tyler. She reached in the back of her diaper and I heard Nicole scream, "Mom, Ellie's poopy and it's all over her hand." I ran and grabbed her, but by then it was on her face, torso, arms and wow did it ever smell! I put her in the tub, used a bunch of wipes and soaped her into a full lather. I can't say she enjoyed it though.
Nicole and K~ were in the upstairs closet. There's a lam in there since the builder forgot to put in a light fixture. K~ was reaching to turn it off and it fell down and broke the fluorescent bulb. I handled it okay, but I wish I would've done it better and said, I'll bet it was scary when the lamp fell - let's get the vacuum and clean it up.
Michelle had her dance thing and I think she found out how difficult it can be to coordinate a dance routine.
Spielberg had his science fair and did a nice job of demoing his project. He and B~ (friend) tried doing a stop-gap film together, but it wasn't B~'s idea of a good time and they argued. B~ thought it would funny to film his foot instead - that didn't go over well with Spielberg. They ended up playing Woolly Bully instead.
Ty's PT and teacher came today. E~ was sick. We got out the side layer and he didn't seem to mind being on his side too much. He already looks like he isn't feeling well and his hair is starting to thin faster. I did a lot of insurance calls today. I spent 2-3 hours on the phone and still have 3 bills to straighten out.
Nicole and K~ were in the upstairs closet. There's a lam in there since the builder forgot to put in a light fixture. K~ was reaching to turn it off and it fell down and broke the fluorescent bulb. I handled it okay, but I wish I would've done it better and said, I'll bet it was scary when the lamp fell - let's get the vacuum and clean it up.
Michelle had her dance thing and I think she found out how difficult it can be to coordinate a dance routine.
Spielberg had his science fair and did a nice job of demoing his project. He and B~ (friend) tried doing a stop-gap film together, but it wasn't B~'s idea of a good time and they argued. B~ thought it would funny to film his foot instead - that didn't go over well with Spielberg. They ended up playing Woolly Bully instead.
Ty's PT and teacher came today. E~ was sick. We got out the side layer and he didn't seem to mind being on his side too much. He already looks like he isn't feeling well and his hair is starting to thin faster. I did a lot of insurance calls today. I spent 2-3 hours on the phone and still have 3 bills to straighten out.
Sunday, May 1, 2011
February 1, 2007
What a very long day. Chemo days always are. The y decided to do Ty's CT scan today. We had some good news - they've decided it's only slightly bigger this time. The necrosis (old blood) in the middle of the tumor hasn't gotten any bigger though. It may be that the chemo is working. The barium made Tyler really sick- he tried to vomit every time we put it in his gtube. They also said that although they are not symmetrical his kidneys look to be the same size. That's a good thing. My mom went this time. We always have interesting conversations. I wonder if it's hard to watch your daughter and her son go through medical trials? Do you still have the same wish to exchange places and bear her burden or his? Or, do you think, "Been there, done that and good wishes" while thinking so glad it isn't me? I have a feeling that ache a mother has when her child is going through a tough time never stops coming, although part of you know it needs to be.
Food today:
3 egg whites omelet & 1/2 grapefruit
2 slices whole wheat toast, 2 T strawberry jam
1 string cheese
10 potato chips and 7 Doritos ( we were at the hospital for 7 hours and the cafeteria was closed)
1 60 calorie yogurt
2 servings spaghetti & 1/2 slice whole wheat bread
lots of water and one no-bake cookie
Maybe a better food day tomorrow, maybe some weight loss?
I held Ty so long today that my femur was aching all the way home. But I have no right to complain - my hair isn't falling out, I don't have constant nausea, and I have perfect blood pressure - not to mention the abilities I have to run, skip, walk, jump, dance crazy and silly, read what I want, speak what I want, go where I want, play the piano, sew, knit write, open doors, play games, have friends, drink and eat what I like (except at Olive Garden) and a whole lot of other things - I'd run out of room if I write them all. Praise the Lord - chemo might work!
Food today:
3 egg whites omelet & 1/2 grapefruit
2 slices whole wheat toast, 2 T strawberry jam
1 string cheese
10 potato chips and 7 Doritos ( we were at the hospital for 7 hours and the cafeteria was closed)
1 60 calorie yogurt
2 servings spaghetti & 1/2 slice whole wheat bread
lots of water and one no-bake cookie
Maybe a better food day tomorrow, maybe some weight loss?
I held Ty so long today that my femur was aching all the way home. But I have no right to complain - my hair isn't falling out, I don't have constant nausea, and I have perfect blood pressure - not to mention the abilities I have to run, skip, walk, jump, dance crazy and silly, read what I want, speak what I want, go where I want, play the piano, sew, knit write, open doors, play games, have friends, drink and eat what I like (except at Olive Garden) and a whole lot of other things - I'd run out of room if I write them all. Praise the Lord - chemo might work!
January 25, 2007
Another Thursday, another chemo treatment. B~ has a lot going on at work right now, and was unable to go with me this time. We got Tyler loaded up, started off, smelled something funny, went around the block and back in the garage. I double-checked and sure enough he needed a second BM change. It was pretty messy and he needed a new pair of pants, I'm so glad we turned around. He would've been miserable riding all that way like that. We still made it to his appointment on time. He has lost about 6 pounds and still has high blood pressure so they've doubled his med (lysinopril).
His white blood cell count is 1.2 - low, but still high enough to receive chemo. He listened to Harp by the Sea (it was Pachelbel Canon in D), very soothing. I'm glad to have my mom along. We seem to have good conversations and talk about the things that matter. Today I walked her through a vision quest (that's how long we were in the patient room) although we were interrupted quite a few times. She's a good sport. Later, we talked about prayer and making it more meaningful. She told me of a manuscript she had read and it mentioned beginning a prayer by acknowledging Heavenly Father and who He is. Right away, that really gelled with me. I think I'll incorporate it in my prayers. We talked about family dynamics and the intricacies of each sister. It's great that we're all so different and that these differences can complement each other.
As I was reading Farmer Boy - about butchering time- Nicole asked, "What is yearling beef?" I told her it was a one year old cow. "Wait, that isn't fair. You mean the cow is just young, and now they're going to kill it? That's so mean!" We had a discussion about man's dominion over the earth and that animals were put here for us, by God, to be used wisely and carefully. That seemed to assuage her mind a little. She really gets absorbed in the stories.
Spielberg won't be skiing this coming Monday after all, P~ forgot that she has a cub scout field trip. He will have to wait for the following Monday. I tried to help him see the good he could try to get from it - we came up with - he'll have a whole 'nother week to be excited about it - and of course, he will get to practice patience.
Ellie has turned the left shoulder of everything I wear into her tissue. I have gone through an entire family-sized box of tissues trying to stay ahead of her runny nose - impossible! She loves to bring me her board books and flip through the pages. She is very observant and babble her own version of the story to me in babyspeak. It almost sounds like Mandarin Chinese sometimes.
Michelle spent a late night (until 8:30) at BR~'s house and has arranged a breakfast picnic for tomorrow. She made chocolate chip cookies with Aunt M~ today. Pretty tasty, although my own cookie cravings have dropped off.
Our Tuesday Key of Liberty simulation went well - the boys really had to find their own way through it. It was challenging and, of course, rewarding. They were the US Senate Armed Services committee and had to decide if they would support a presidential proposal to go in and take out Iranian nuclear facilities and detain their religious Imams. Each of them realized the are lacking in the skills needed to be a statesman.
Time is such a strange concept because it is going by all too quickly and yet all too slowly in the same instance.
Ty will have a scan on Feb. 8th to confirm that the tumor is really responding to chemo. I am still trying to shake off heavy, cloudy feelings. I feel a need to loosed my mind from it's coconut shell hardness and to let the sweet milk of kindness flow out.
Several hymns.
His white blood cell count is 1.2 - low, but still high enough to receive chemo. He listened to Harp by the Sea (it was Pachelbel Canon in D), very soothing. I'm glad to have my mom along. We seem to have good conversations and talk about the things that matter. Today I walked her through a vision quest (that's how long we were in the patient room) although we were interrupted quite a few times. She's a good sport. Later, we talked about prayer and making it more meaningful. She told me of a manuscript she had read and it mentioned beginning a prayer by acknowledging Heavenly Father and who He is. Right away, that really gelled with me. I think I'll incorporate it in my prayers. We talked about family dynamics and the intricacies of each sister. It's great that we're all so different and that these differences can complement each other.
As I was reading Farmer Boy - about butchering time- Nicole asked, "What is yearling beef?" I told her it was a one year old cow. "Wait, that isn't fair. You mean the cow is just young, and now they're going to kill it? That's so mean!" We had a discussion about man's dominion over the earth and that animals were put here for us, by God, to be used wisely and carefully. That seemed to assuage her mind a little. She really gets absorbed in the stories.
Spielberg won't be skiing this coming Monday after all, P~ forgot that she has a cub scout field trip. He will have to wait for the following Monday. I tried to help him see the good he could try to get from it - we came up with - he'll have a whole 'nother week to be excited about it - and of course, he will get to practice patience.
Ellie has turned the left shoulder of everything I wear into her tissue. I have gone through an entire family-sized box of tissues trying to stay ahead of her runny nose - impossible! She loves to bring me her board books and flip through the pages. She is very observant and babble her own version of the story to me in babyspeak. It almost sounds like Mandarin Chinese sometimes.
Michelle spent a late night (until 8:30) at BR~'s house and has arranged a breakfast picnic for tomorrow. She made chocolate chip cookies with Aunt M~ today. Pretty tasty, although my own cookie cravings have dropped off.
Our Tuesday Key of Liberty simulation went well - the boys really had to find their own way through it. It was challenging and, of course, rewarding. They were the US Senate Armed Services committee and had to decide if they would support a presidential proposal to go in and take out Iranian nuclear facilities and detain their religious Imams. Each of them realized the are lacking in the skills needed to be a statesman.
Time is such a strange concept because it is going by all too quickly and yet all too slowly in the same instance.
Ty will have a scan on Feb. 8th to confirm that the tumor is really responding to chemo. I am still trying to shake off heavy, cloudy feelings. I feel a need to loosed my mind from it's coconut shell hardness and to let the sweet milk of kindness flow out.
Several hymns.
Sunday, February 27, 2011
January 8, 2007
The girls and I finished cleaning and organizing the basement. Of course then they had the perfect place to play with their Polly Pocket dolls - they did clean them up though.
Tyler seems to try to throw up every time he foes to the bathroom - I will have to ask the doctor about that. His hair is starting to fall out - only about 20-30 strands a day, but that is a lot for him. He is developing some mouth sore and I'm going to get some toothettes for him to swab some "magic mouthwash" in his cheeks. I am having to put Vaseline on his lips about 5-6 times a day, they get so dry!
Nicole worked a lot on her front and back walkovers - her back ones are pretty good but she keeps tucking her chin and collapsing on the front ones.
Michelle had her first day in her new gymnastics class and she was a bit nervous. They are learning aerials and front handsprings. She will get the hang of it though and she has beautiful body lines - another mom even commented on it.
Ellie had the worst messy diaper - all up her back - it was a definite bath time cleanup. She loves the tub. She kept wanting me to hold her and look at books. She also enjoys sitting next to me on the piano bench and playing very gently right next to my hands when I practice.
Spielberg finished his book, Freedom Factor. B~ said how proud he was of him and how he'd now read more books than he had at his age. Spielberg has become more of a tease since going back to school - I kind of thought it might happen, but I'm still disappointed. B~ received a bleated Christmas gift at work today - a Christmas ornament from the White House.
Tyler seems to try to throw up every time he foes to the bathroom - I will have to ask the doctor about that. His hair is starting to fall out - only about 20-30 strands a day, but that is a lot for him. He is developing some mouth sore and I'm going to get some toothettes for him to swab some "magic mouthwash" in his cheeks. I am having to put Vaseline on his lips about 5-6 times a day, they get so dry!
Nicole worked a lot on her front and back walkovers - her back ones are pretty good but she keeps tucking her chin and collapsing on the front ones.
Michelle had her first day in her new gymnastics class and she was a bit nervous. They are learning aerials and front handsprings. She will get the hang of it though and she has beautiful body lines - another mom even commented on it.
Ellie had the worst messy diaper - all up her back - it was a definite bath time cleanup. She loves the tub. She kept wanting me to hold her and look at books. She also enjoys sitting next to me on the piano bench and playing very gently right next to my hands when I practice.
Spielberg finished his book, Freedom Factor. B~ said how proud he was of him and how he'd now read more books than he had at his age. Spielberg has become more of a tease since going back to school - I kind of thought it might happen, but I'm still disappointed. B~ received a bleated Christmas gift at work today - a Christmas ornament from the White House.
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